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A Week Managing Chronic Illness: My Journey
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Caring for someone living with a chronic condition or terminal illness
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If you have chronic illness, you’ll probably understand this feeling. We don’t want to “collect diagnoses.” We don’t want more things to be wrong with our bodies. But when you’re living with chronic symptoms, having a diagnosis means you can finally get the right treatment, the right support, and sometimes even just validation that what you’re going through is real. People with chronic illness aren’t chasing labels. We’re trying to understand what we’re fighting. Does anyone else with chronic il
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If you have chronic illness, you’ll probably understand this feeling. We don’t want to “collect diagnoses.” We don’t want more things to be wrong with our bodies. But when you’re living with chronic symptoms, having a diagnosis means you can finally get the right treatment, the right support, and sometimes even just validation that what you’re going through is real. People with chronic illness aren’t chasing labels. We’re trying to understand what we’re fighting. Does anyone else with chronic il
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Routine living with chronic illness, what does one look like? For many of us with chronic illness, this is why we are unable to work. Our chronic illnesses are so unpredictable that we cannot set up a routine. Therefore, we can't plan ahead because we never know how we're going to feel, if we're going to be in a flare, or if our pain levels are going to be too high to function If you have chronic illness, comment below to let us know how you handle the lack of it being able to have an actual rou
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Living with chronic illness doesn’t mean you stop dreaming big. It means you build a different blueprint. In this episode, Kate — a run coach & physical therapist living with hEDS — and I talk about what it really looks like to chase goals in the gray areas of chronic illness. Not toxic positivity. Not “woe is me.” Just honest conversations about: • redefining movement • navigating self-limiting beliefs • training in a body that changes daily • and building resilience without self-betrayal Goals
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